So I really have been meaning to blog but again, things just escape me. There is either too much going on or not enough. And you know me, most of the time I blog its after something major has just happened. Well boys and girls, in this case, too many things have happened. So while I won't make this long I will touch on a couple of things that I have been facing the last couple of weeks.
Yup, another 12 days in the hospital. It started the day of the Superbowl and I was over at a friends house watching and I could just tell my eyes start burning. ( which is my weird indication that I was getting a fever ) but I let it go thinking it would go away. Well, my friends it didn't. By the start of the 4th quarter, my body felt like it was literally burning from the inside out. You could not touch any part of my body without almost being burned. I mean I had jeans on and when I got up the place I was sitting felt like fire. Finally after the end of the game, I contacted, or lets re-phrase this, I tried to contact my primary doctor, my urologist, my nephrologist and finally got a hold of min infectious dr who told me what I ultimately knew and that was to get the ER. They took me straight back and my temp at that point was 103.7. I was in pain and lets not talk about how many times it took them to get an iv in me. Its pretty bad when your nurse walks she's know you enough to bring like 3 other people with her cause Im a hard stick. Well finally after about 10 nurses, and over 15 times, they finally got it in right by my shoulder ( ouch ) My kidney and tubes were behind swollen and they admitted me. I ended up having 2 different infections both which kept me in there for 12 days. And then I get the news Friday morning that my creatinine was back up 2.6 and they didn't know why. I looked at my doctor and said Im leaving. You can tell me the results on Monday. Truth it I had plans and the other truth was I didn't want to lay there again all weekend and my pitiful pediatric iv they finally got placed after changing it 5 more times, was holding up. ( I mean a heart team even came in and tried with their machine to start a mid line and they missed and had no lunch. When I say Im a hard stick, Im not kidding ) He looked at me and laughed and said Ill go sign the papers. I think he thought I was gonna come after him if he had told me no. So we will see the down the road what his means. Right now, they are trying to get me into University of Louisville Nephrology group. So maybe, just maybe we can find some answers. I can't keep getting infections in this kidney and stones or the function is going to drop dramatically and thats what we are trying to avoid. I JUST WANT AN ANSWER! Okay.. enough about that....
So while all of this is going on, my nanny had broken her hip and was in the Clark hospital. My poor mom was trying to be in 2 places at one time but I was fine. I had my breakdowns. But she made it though surgery and now is in a rehab facility in Lexington. I am going to go see her sometime this week. I just don't have the nerves right now to see her. I love my nanny and the last time I saw here was in the hospital but now is sort of different.
So my job is still in limbo at the moment. So I don't even know what to do there. Now do I apply for disability or do I just continue to work and hope they don't let me go. It really isn't fair to the company but I guess I will make that decision at time goes on and we see what is really going to happen with his kidney. I am not sure my last number but if it was going up, I would not be surprised if had went up even more. Which brings me much closer to that transplant list. Which makes me think even more. I am 32. I have been dealt such a an lucky hand in every dept. of my life it seems. I look around at my friends that are healthy, thriving, have families, have jobs and are just well off. And here I am. Technically still have a job, live with my parents, my health is well, no word for that. But I do have some bright sports and those bright sports are what encourage me to go on. I have good friends, parents, family and my son. And yes, for those who are on my Facebook the presents were from my friend. Not my boyfriend=) He has been one of the bright spots as well. Besides my family, he has seen me though a lot of my illnesses and I know he will be there with me as I face them down the road. He may not know how much he means to me, but its a lot. Its so great to have a friend like that.
So I think thats enough depressing stuff for one blog? I guess I will end with this..
Don't take anything for granted. I mean you hear it all the time, Im not dying or near it but any bad infection could slowly start making my life a mess. I have to realize that. So I have to let people know what they mean. And everything I had said I ever wanted to do, I am going to do. Im not planning my funeral people, but before this kidney thing takes over, I feel like I just need to get out there. I have done several of the things I never thought I would here lately. So thanks for reading. And Ill keep in touch!
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